Text Size: a  |   a 

5 Myths (With Facts) about Primary Progressive MS

May 12, 2017

Primary progressive multiple sclerosis (PPMS) varies between individuals. Not everyone will have the same symptoms or experiences, making the disease very complex. Because of the many mysteries surrounding PPMS, it has generated many myths about this condition and can create confusion when you’re trying to research multiple sclerosis (MS). Learn some of the most common myths vs. facts about PPMS here:


1. Myth: There will never be a cure for PPMS.

Fact: Research is ongoing for medications.

It’s true that MS isn’t curable. Certain medications are approved by the U.S. Food and Drug Administration (FDA) for relapsing-remitting forms of MS., but most don’t seem to work for PPMS. However, this doesn’t mean that there will never be a cure. Research for PPMS medications is ongoing, as well as possible cures for all forms of MS.

2. Myth: PPMS primarily occurs in women.

Fact: PPMS affects women and men at the same rate.

Some forms of MS tend to occur more often in women than in men, but according to the National MS Society, PPMS seems to affect both women and men equally in number.

3. Myth: A PPMS diagnosis means you’ll be disabled.

Fact: Disability rates range in PPMS.

Physical disability is a risk with PPMS, perhaps more so than other forms of MS. This is so because PPMS causes more lesions on the spine, which can create gait issues. However, this doesn’t mean that you should expect disability after being diagnosed with PPMS. Rates of disability vary, just like symptoms do. You can help prevent the onset of walking problems by exercising regularly as part of an active lifestyle. You can also talk to your doctor about other options.

4. Myth: Having PPMS means you have to quit your job.

Fact: Working won’t make PPMS worse.

It’s a myth that you have to stop working just because you have PPMS. It’s true that some symptoms can make working difficult, such as fatigue, cognitive impairment, and walking problems. But most people with PPMS can at least work part-time without any significant issues. If you have safety concerns related to your job, you may consider talking to your employer about possible accommodations. Your doctor can provide recommendations as well.

5. Myth: PPMS is deadly.

Fact: PPMS is a progressive disease, but not necessarily fatal.

The National MS Society reports that the majority of those with MS reach average life spans. Cognitive and mobility issues, combined with the lack of cure for PPMS, have generated the myth that this disease is deadly. Lifestyle changes can significantly improve your overall quality of life, as well as help to prevent complications from PPMS.  

READ MORE MYTHS HERE:  http://www.healthline.com/health/multiple-sclerosis/primary-progressive-ms/myths-facts?utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=multiplesclerosis#3